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Mental Pain in Patients with Neurofibromatosis and Its Association with Disease Severity
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Reyhaneh Norouzi1    , Somaye Robat Mili *2 , Akram Sanagoo3 , Fatemeh Mehravar4 , Leila Jouybari5 |
1- Master's Student in Clinical Psychology, Faculty of Medical Sciences and Technologies, Tehran University of Research Sciences, Tehran, Iran.
2- Assistant Professor, Department of Health and Welfare Governance, Faculty of Governance, University of Tehran, Tehran, Iran. , robatmili.s@ut.ac.ir
3- Associate Professor, Department of Nursing, Faculty of Nursing and Midwifery, Golestan University of Medical Sciences, Gorgan, Iran. Associate Professor, Department of Nursing, Gorgan Branch, Islamic Azad University, Gorgan, Iran.
4- Assistant Professor of Epidemiology, Department of Biostatistics and Epidemiology, School of Health, Golestan University of Medical Sciences, Gorgan, Iran.
5- Professor, Department of Nursing, Faculty of Nursing and Midwifery, Golestan University of Medical Sciences, Gorgan, Iran. Iranian Neurofibromatosis Supportive Association. |
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Abstract: (2992 Views) |
Background and Objective: The psychological experience of mental pain can lead to distress similar to that caused by actual injury or trauma. As such, it poses a life-threatening consequence for chronic patients, although it is rarely assessed and treated in clinical settings. One of the diseases associated with high levels of physical and mental pain is the rare disorder neurofibromatosis. This study aimed to evaluate mental pain in patients with neurofibromatosis and its association with disease severity.
Methods: This descriptive-analytical study was conducted on 207 patients with neurofibromatosis who were members of the Iranian Neurofibromatosis Support Association during 2023. Data collection tools included a demographic and clinical information registration form and the Orbach and Mikulincer Mental Pain Scale (OMMP), which comprises 44 items and 6 subscales, with a scoring range from 44 to 220.
Results: The total mental pain score was 121.15±42.41, with a range of 44 to 206. The total mental pain scores for men and women were 123.67±38.98 and 120.31±43.58, respectively. The "confusion" subscale had the highest average score, while the "fear of loneliness" subscale had the lowest average score. There was a statistically significant association between the total mental pain score and its subscales with the severity of the disease and the patient's educational level (P<0.05).
Conclusion: The mental pain scores of patients with neurofibromatosis were evaluated to be relatively unfavorable. |
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Keywords: Pain [MeSH], Neurofibromatosis [MeSH], Rare Disease [MeSH], Psychiatrists [MeSH], Fear [MeSH]
Article ID: Vol26-14 |
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Full-Text [PDF 552 kb]
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Type of Study: Original Articles |
Subject:
Clinical Psychology
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Norouzi R, Robat Mili S, Sanagoo A, Mehravar F, Jouybari L. Mental Pain in Patients with Neurofibromatosis and Its Association with Disease Severity. J Gorgan Univ Med Sci 2024; 26 (2) :29-36 URL: http://goums.ac.ir/journal/article-1-4414-en.html
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